Bit of Whimsy Dolls Friends, it is our honor to announce that we have partnered with another wonderful organizer for a great cause. For the month of May, we will be raising awareness and donating 10% of all sales on our website www.bitofwhimsydolls.com to Great Strides, the largest national fundraising event for Cystic Fibrosis (CF).
Now admittedly, Rob and I knew next to nothing about CF prior to having this disease suggested to us for support, but after looking into CF to understand more about this disease and the Great Strides organization, it is our honor to forge another wonderful partnership and we think you too will feel the same sense of curiosity we had. On behalf of everyone at Great Strides, Rob and I would like to thank you for your support this Month for Cystic Fibrosis and Great Strides. Below is a brief story written by our partner, Amy Rovai, Chairperson for Great Strides, Sacramento, CA.
Meet Taryn and Taya! Taryn is three and Taya just turned one! They are your average sisters- they love to play together, enjoy swinging at the park, and love to dress in anything that is pink and frilly! Looking at them, you would never guess that they are suffering from a life-threatening disease that has no cure… but they are. Taryn and Taya both have Cystic Fibrosis.
Cystic fibrosis (CF) is a genetic chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). People who have CF spend much of their day taking medicines to help deal with infections, enzyme pills before snacks and meals, multiple breathing treatments to help open airways, and chest therapy to help loosen mucus trapped in their lungs. They have to be very careful about germs and bacteria, since they are more susceptible to illnesses, and have to fight harder to get rid of them.
In the 1950s, few children with cystic fibrosis lived long enough to see their 5th birthday. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. The current median age for survival is 37, and new research and treatments aimed at targeting the underlying defects of CF, are hoping to extend patients’ lives so they can live longer, healthier, happier lives.
For more information about Taryn and Taya, or the Cystic Fibrosis Foundation, please visit:
Thank you so much for your support!